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ThursdayJuly 27, 2023

The cost of care for disabilities and chronic illnesses

Stephen Jerkins
For Tennesseans with disabilities, regular trips to the hospital have more than financial costs.
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The American healthcare system is not known for its affordability. Giving birth costs an average of $18,885 nationwide before insurance. If you have a medical emergency, you can expect to spend hundreds on your ambulance ride — and that doesn’t even include the cost of the medical care itself. In fact, medical debt is the leading type of debt on credit cards in the U.S.

But… if you live with disabilities or chronic illnesses, those medical costs are significantly higher. On top of that, the sacrifices you might make in order to afford the medical care can come at the cost of one’s social life, or even basic needs.

Today, we’ll hear from disabled Nashvillians and their caregivers about the cost of care, financial and beyond.

But first, WPLN’s education reporter Alexis Marshall joins us to talk about her in-depth reporting on Tennessee’s 3rd grade retention law.

Guests: 

  • Ashton McGrady, social media content creator
  • McKenzie Tuckson, student and advocate for disabilities
  • Tamara Tuckson, caregiver, special education advocate, and IEP consultant
  • Jackie Kancir, caregiver and disability policy advocate
  • Lauren Pearcy, Executive Director for Tennessee Council for Developmental Disabilities 

This episode was produced by Elizabeth Burton.

Special thanks to Tom Jedlowski, Leisa Hammett, Tyler Samuel and Cathlyn Smith. 

Further Reading:

  • The Extra Costs of Living with a Disability in the U.S., Stephen McGarity, UT Knoxville et al. 
  • Navigating Nashville when you have a disability,This Is Nashville
  • Doctors must deliver more bad news to patients, as a worldwide cancer drug shortage hits Nashville,WPLN News
  • Navigating into adulthood with disabilities,This Is Nashville
  • Hearing McKenzie, Tennessee Council on Developmental Disabilities 
  • Rare genetic disorder case inspires new ER protocol, emphasizing empathy and respect, Fox17 WZTV Nashville 
  • Learn about SynGap1, Jacqui Kancir’s daughter’s condition

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